Dementia Researcher Blogs

Danielle Wilson - Technology to Help Care

Danielle Wilson narrates her blog written for Dementia Researcher.
Works in the UK Dementia Research Institute, Care Research & Technology Group at Imperial College London. In this blog Danielle discusses her passion of tech research and its ability to augment care, and about some of the work being done within the UKDRI to drive this forward, at the cutting edge of support (if you enjoy this you should also check out our blog from Pippa Kirby who works within the DRI).
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-technology-to-help-care/
--
Danielle Wilson is a former acting director of a pre-eminent NHS centre conducting clinical trials & observational studies in across dementia & mental health conditions,  and is the current Centre and Research Commercialisation lead at UK Dementia Research Institute, Care Research & Technology at Imperial College London. Danielle has extensive clinical research experience working with the National Institute of Health Research networks, the University of Oxford, the National Health Service (including Oxford University Hospitals NHS FT), Clinical Research Organisations & global pharmaceutical companies. She has experience working across medical specialities in a variety of human clinical trials, tissue, imaging & data studies. Passionate about patient care, participant safety & research excellence. Invested in staff development; most recently developed & implemented a competency framework for clinical researchers.
Danielle is also a Chair & long-standing expert member of a Health Research Authority research ethics committee leading a multidisciplinary group to review & give opinion on a broad range of studies, with particular specialism in applying knowledge of the mental capacity act to review research studies recruiting individuals who lack capacity.
--
Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk
This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.

Thaïs Caprioli - The benefits and drawbacks of accessing post-diagnostic support remotely

Thaïs Caprioli narrates her blog written for Dementia Researcher.
Within the last two decades, the use of information communication technology (ICT) to deliver health and social care services has received considerable attention. The possible role of ICT to increase the number of people accessing care, whilst aligning with a cost-saving agenda, forms an enticing solution to an underfunded health and social care sector which is faced with an ever-increasing demand. The adoption of ICT in practice has been implemented at quite a leisurely pace, that is, until the COVID-19 pandemic caused a widespread shift from accessing post-diagnostic support in-person, to remotely. Is this a good thing? Thaïs discusses the changing role of support in this special blog for our Tech & Dementia week.
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-the-benefits-and-drawbacks-of-accessing-post-diagnostic-support-remotely/
--
Thaïs Caprioli is a PhD Student at University of Liverpool, undertaking health service research and exploring health inequalities. A passion that stems from her years working with people living with dementia, and as a physiotherapist and as a programme coordinator within a health programme implementing in lower- and middle-income countries. In her spare time she can mostly be found reading a book with a cup of coffee.
--
Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk
This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.

Dr Kamar Ameen-Ali - Advances in digital cognitive assessments for dementia diagnosis

Dr Kamar Ameen-Ali narrates her blog written for Dementia Researcher.
Historically, cognitive assessments for dementia diagnosis have relied on pencil and paper measures administered by a clinician. These tests are designed to evaluate various cognitive domains, such as memory, visuospatial abilities, and language, and should indicate whether there are potential signs of dementia. However, performance on these tests can be strongly influenced by other factors, such as cultural background or educational level. There are questions relating to whether such tests have the sensitivity to detect early stages of diseases, like Alzheimer’s, which is crucial if this is when treatments are most effective. In this blog Kam discusses how technology is being used to advance cognitive assessments used in dementia diagnosis.
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-advances-in-digital-cognitive-assessments-for-dementia-diagnosis/
--
Dr Kamar Ameen-Ali is a Lecturer in Biomedical Science at Teesside University & Affiliate Researcher at Glasgow University. In addition to teaching, Kamar is exploring how neuroinflammation following traumatic brain injury contributes to the progression of neurodegenerative diseases that lead to dementia. Having first pursued a career as an NHS Psychologist, Kamar went back to University in Durham to look at rodent behavioural tasks to completed her PhD, and then worked as a regional Programme Manager for NC3Rs.
--
Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk
This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.

Pippa Kirby - Communicating Smart Technology

Pippa Kirby, narrates her blog written for Dementia Researcher.
There is no doubt that technology is dramatically changing the landscape of health and social care, and dementia care is no exception. Pippa's research is focused on exploring people with dementia’s perceptions and experiences of smart home technology. ‘Smart homes’ are one of the ways being proposed in which technology may be used to prevent hospitalisations and enable people to remain living in their own homes for longer. An appealing proposition perhaps, but a concept which can be divisive: will these systems promote independence and greater freedom, or is this Big Brother? It is important that we learn more about what people with dementia think of this type of home technology, and that their voices are central to the design and development of these systems so that the resulting services are ethical, engaging and effective. In this blog speech and language therapist Pippa discusses her research exploring how we can support the communication of people with speech, language and cognitive difficulties to engage with new innovative technology, and ensure they have as much of a place at the table as those without communication difficulties when it comes to design and delivery.
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-communicating-smart-technology/
--
Pippa Kirby is a Speech and Language Therapist and Pre-doctoral Clinical Research Fellow based within the UK Dementia Research Institute at Imperial College London. As a clinician Pippa became interested in how we empower and involve patients with communication difficulties in conversations and in decision making, this led to her current research within the UKDRI Care & Technology Centre, developing smart homes for people with dementia, and how to best explore and understand the perspectives of people with dementia, and involve them in the research.
Enjoy listening and reading our blogs? We're always on the look out for new contributors, drop us a line and share your own research and careers advice dementiaresearcher@nihr.ac.uk

Dr Sam Moxon - Nanomedicine in Dementia Research

Dr Sam Moxon, narrates his blog written for Dementia Researcher.
Nanoparticles are small sized (1-100 nm) particles derived from transition metals, silver, copper, aluminum, silicon, carbon and metal oxides that can easily cross the blood-brain barrier (BBB) and/or produce damage to the barrier integrity by altering endothelial cell membrane permeability. Could this new innovation be the key to targetting new drug therapies to treat Alzheimer's Diseease? Sam explores in this blog for our Tech and Dementia special focus week.
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-techniques-blog-nanomedicine-in-dementia-research/
--
Dr Sam Moxon is a biomaterials scientist at the University of Manchester. His expertise falls on the interface between biology and engineering. His PhD focussed on regenerative medicine and he now works on trying to develop 3D bioprinting techniques with human stem cells, so that we better understand and treat degenerative diseases. Outside of the lab he hikes through the Lake District and is an expert on all things Disney.
Enjoy listening and reading our blogs? We're always on the look out for new contributors, drop us a line and share your own research and careers advice dementiaresearcher@nihr.ac.uk

Dr Alan Cronemberger Andrade - Digital phenotyping in dementia and neurology: we have questions

Dr Alan Cronemberger Andrade narrates his blog written for Dementia Researcher.
Digital interactions could be useful for tracking health states, especially for brain disorders. The problem is that this kind of data may be harder to protect, and less controlled by ourselves. People with dementia, and other cognitive and behavioural problems, are vulnerable to data insecurity. In this blog Alan describes what digital phenotyping is.. the good and bad aspects of using it, and some future perspectives behind ethical and methodological difficulties. Healthcare professionals and non-clinical researchers need to talk more about that.
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-digital-phenotyping-in-dementia-and-neurology-we-have-questions/
--
Dr Alan Cronemberger Andrade is a Neurologist and MSc Student in Neurology and Neuroscience at the Federal University of São Paulo in Brazil. He takes care of patients with neurological problems in diverse settings, and studies how digital technology interacts with the human brain in health and disease, focused on dementia and related disorders. His aim is to find how useful digital technologies could be in the near future, helping dementia patients and their caregivers. He loves writing, travelling, and reading about curious facts of ancient history.
If you would like to write for us, or join out team of regular contributors, drop us a line - dementiaresearcher@nihr.ac.uk

Hannah Hussain - Virtual Reality

Hannah Hussain narrates her blog written for Dementia Researcher.
Its tech and dementia week, and in this blog Hannah explores how virtual reality is jumping out of the hands of gamers, and into the research space as a non-pharmalogical intervention.
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-virtual-reality/
--
Hannah Hussain is a PhD Student in Health Economics at The University of Sheffield. As a proud third generation  migrant and British-Asian, her career path has been linear and ever evolving, originally qualifying as a Pharmacist in Nottingham, then Health Economics in Birmingham. Her studies have opened a world into Psychology, Mental Health and other areas of health, and with that and personal influences she found her passion for dementia.
--
Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk
This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.
Enjoy listening? We're always looking for new bloggers, drop us a line dementiaresearcher@ucl.ac.uk  

Dr Anna Volkmer - Finding your cheer team: Maintaining resilience in academia

Dr Anna Volkmer, narrates her blog written for Dementia Researcher.
When you publish a paper, you probably celebrate and share your news, telling your colleagues and everyone on social media - and everyone will probably share their congratulations. When you win a big grant, or a fellowship... do you want to share the news? Of course you do! However, when you know others are having a hard time or struggling, you may think twice... some may think "Good for you" and be inspired, others however may be less impressed.... how do you tell your colleagues who may only have a short time left on their contract that you just secured another 3, 4 or 5 years of funding? Anna has been thinking about resiliance, and how you celebrate success, following the exciting news of her new Fellowship award. 
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-finding-your-cheer-team-maintaining-resilience-in-academia/
--
Dr Anna Volkmer is a Speech and Language Therapist and researcher in Language and Cognition, Department of Psychology and Language Sciences, University College London. Anna is researching Speech and language therapy interventions in language led dementia and was once voted scariest speech and language therapist (even her children agree).
If you would like to write for us, or join out team of regular contributors, drop us a line - dementiaresearcher@nihr.ac.uk

Dr Gaia Brezzo - The importance of lived experience in research

Dr Gaia Brezzo narrates her blog written for Dementia Researcher.
In this month’s blog, Gaia is reflecting back on a meeting she had with a member of the public earlier in the week. A stroke survivor, who has made it their goal to share with researchers, charities and funding bodies, their views and opinions. Sharing their lived experience of what it’s like to live with the aftermath of a stroke. Gaia also explores how important these voices are in research and how, perhaps, we should all be considering how we could be doing more.
Find the original text, and narration here on our website.
https://www.dementiaresearcher.nihr.ac.uk/guest-blog-the-importance-of-lived-experience-in-research/
--
Dr Gaia Brezzo is a Research Fellow based within the UK Dementia Research Institute at The University of Edinburgh. Gaia's research focuses on understanding how immune alterations triggered by stroke shape chronic maladaptive neuroimmune responses that lead to post-stroke cognitive decline and vascular dementia. Raised in Italy, Gaia came to the UK to complete her undergraduate degree, and thankfully, stuck around. Gaia writes about her work and career challenges, when not biking her way up and down hills in Edinburgh. Follow Gaia on Twitter: @Gaia_Brezzo
--
Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk
This podcast is brought to you in association with Alzheimer's Research UK and Alzheimer's Society, who we thank for their ongoing support.